Eight key needs of people with young onset dementia and family members
As part of The Angela Project, a three-year long young onset dementia research study, the team asked people living with young onset dementia and family supporters to tell them about services they had found helpful. They received over 850 examples.
They analysed these to see what needs helpful services met; this led to a set of eight needs that seem to be central to helpful support. The short films below have been created to highlight these eight key areas of support.
People living with young onset dementia need
1. Young onset specific information, advice and support to stay independent
2. Age-appropriate support to stay fit, active and mentally well
3. Age-appropriate activity and occupation to maintain identity
Family members of people living with young onset dementia need
4. Specialist support to know how to care for issues specific to young onset dementia
5. Support to retain life beyond caring, such as employment
People living with young onset dementia and family members both need
6. To feel connected with each other
7. To feel connected with friends or others who understand challenges of living with young onset dementia
8. To have opportunities to contribute to wider society
Good practice in young onset dementia
The Angela Project was a three-year long research project; the largest study of young onset dementia ever carried out in the UK. It was designed to look at how post-diagnostic support for people living with young onset dementia and the accuracy of diagnosis can be improved