Good practice in young onset dementia

The study was dedicated to Angela who was diagnosed with dementia at 51 years of age.  She had symptoms for three years before getting a confirmed diagnosis.  Many other people experience diagnostic delays like Angela.

Largest research study ever into young onset dementia services

During the study, views were gathered from professionals and over 230 people living with, or caring for, someone with young onset dementia making it the largest study of its kind.  500 sets of case notes were audited and the team talked to commissioners and service providers to understand more about what helped and hindered them in providing young onset dementia services.

The survey also looked at good practice and the key needs of people living with young onset and their family members and whether services met these needs; as well as the barriers and facilitators to good practice in post-diagnostic support for younger people.

Key findings and recommendations publication

The Angela Project team has collated some of their key findings and recommendations to create a publication, Good practice in young onset dementia – improving diagnosis and support for younger people with dementia.

Whilst the research is now complete, the team is continuing to look for ways that their findings can be put into everyday practice by creating accessible resources for different audiences and uses.

The Angela Project research papers

You can view all of the research papers from The Angela Project on this webpage.