Our achievements

The Young Dementia Network is gaining momentum and is making progress in the right direction since its launch in late 2016.  We now have over 4000 members including people diagnosed with young onset dementia, family members and friends and a wide range of professionals and people with an interest in the condition. 

We are proud of what the Network has achieved so far thanks to the efforts of our members. An overview of our achievements show that the Network has:

Campaigning for change

The Network has:

Creation of resources

The Network has:

  • created a portfolio of resources for younger people with dementia and their families, health, social care and voluntary sector and service developers and commissioners which combined have been downloaded over 24,000 times
  • collaboratively produced three educational videos as part of the output of The Angela Project

Involvement in research / increasing knowledge

The Network has:

  • been an active partner in The Angela Project (2016-2019), the largest young onset dementia study of its kind and continues to support the team to create new resources and outputs
  • hosted two research-focused events (2018 and 2019) that resulted in the DEFIN-YD project (2020-2022) which is about engaging younger people with dementia to get involved in research
  • established a research log on the Network website to enable people to have better access to young onset dementia related research
  • promoted multiple research projects

Informing and connecting

The Network has:

  • created a dedicated website for the Young Dementia Network (2021)
  • facilitated an ongoing programme of tea-time webinars, delivered by Network members since October 2020
  • produced a monthly e-newsletter sent to all Network members
  • been part of young onset dementia conferences in association with the Journal of Dementia Care in 2016 and 2018
  • presented or exhibited at many conferences, events, exhibitions, shows, workshops and seminars including the UK Dementia Congress, Alzheimer’s Society annual conferences, the Alzheimer’s Show and other professional association events

Our objectives

The objectives of the Young Dementia Network are to inform and connect,  improve understanding and awareness, improve the quality and provision of age-appropriate support and to create positive change

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The need for change

People with young onset dementia face unacceptable delays in diagnosis, a lack of support following diagnosis and often face a lack of understanding of the condition

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Join the Network

Joining the Young Dementia Network is FREE!

 

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