Our achievements

The Young Dementia Network is gaining momentum and is making progress since its launch in late 2016.  Ever growing, we have over 4000 members including people living with young onset dementia, family members and friends and a wide range of professionals and people with an interest in the condition.  

Our dedicated membership is actively working to achieve tangible improvements over the longer term. So much of our activity must be a ‘work in progress’, with shorter term gains becoming both stepping stones to the future and benefits for people now.

Here is a selection of the Network’s positive work so far – we are:  

  • developingresources and educational videos for people affected by young onset and professionals 
  • establishing and maintaining a research logenabling better access to young onset dementia research 
  • continuing active involvement  in and promotion of young onset dementia research, including DEFIN-YD 2020-2022 which is about engaging younger people with dementia to get involved in research
  • reaching out internationally to connect with professionals in the Young Onset Dementia Knowledge Centre, Netherlands 
  • informing and connecting people via our newsletters and social media, website, webinars and a host of third-party events, presentations and articles 
  • actively collaborating with One Dementia Voice group of dementia charities to launch a campaign Dementia, Disability and Hope in 2022

Campaigning for change

The Network has:

Creation of resources

The Network has:

  • created a portfolio of resources for younger people with dementia and their families, health, social care and voluntary sector, service developers and commissioners
  • collaboratively produced three educational videos as part of the output of The Angela Project

Involvement in research / increasing knowledge

The Network has:

  • hosted research-focused events (2018 and 2019) that resulted in the Wellcome Trust funded DEFIN-YD project  (2020-2022) 
  • established and maintained a research log on the Network website enabling better access to young onset dementia research 
  • been an active partner in The Angela Project  (2016-2019), the largest young onset dementia study of its kind and continues to support the team to create new resources and outputs 

Informing and connecting

The Network has:

  • reviewed its strategy, purpose and devised a new three-year plan (2021)  
  • created a dedicated website for the Young Dementia Network  (2021) 
  • facilitated an ongoing programme of monthly tea-time webinars, delivered by Network members since October 2020 
  • produced a monthly e-newsletter sent to all Network members 
  • been part of young onset dementia conferences in association with the Journal of Dementia Care and presented at numerous other conferences and events  

Our objectives

The objectives of the Young Dementia Network are to inform and connect,  improve understanding and awareness, improve the quality and provision of age-appropriate support and to create positive change

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The need for change

People with young onset dementia face unacceptable delays in diagnosis, a lack of support following diagnosis and often face a lack of understanding of the condition

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Join the Network

Joining the Young Dementia Network is FREE!

 

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