The Young Dementia Network is made up of people whose lives are affected by young onset dementia, their family and friends, as well as professionals who work in the fields of dementia and social care.
Whilst our members may have different backgrounds, reasons to be involved and priorities, they have a shared purpose – to improve the lives of people affected by young onset dementia.
A growing membership
The Network currently has over 4500 members:
10% are people living with young onset dementia
28% are family members or friends
42% work in the field of health and social care
5% are researchers
4% are young onset dementia service providers
Our members work within organisations in the UK including:
Alzheimer’s Research UK
Dementia Carers Count
Dementia Engagement and Empowerment Project (DEEP)
Journal of Dementia Care
Rare Dementia Support
Why do people join the Network?
Feedback from members tell us that the top reason why they joined the Network was in order to receive young onset dementia-specific information and resources and that joining has made them feel better informed and better connected. They believe that the Young Dementia Network is having a positive impact on policy, practice and service provision.
Our steering group
Our steering group includes a mix of people affected by young onset dementia, clinicians, researchers and a range of service providers who together guide the development of the Network and its activities