Our members

The Young Dementia Network is made up of people whose lives are affected by young onset dementia, their family and friends, as well as  professionals who work in the fields of dementia and social care.

Whilst our members may have different backgrounds, reasons to be involved and priorities, they have a shared purpose – to improve the lives of people affected by young onset dementia.

A growing membership

The Network currently has over 4800 members:

  • 10% are people living with young onset dementia
  • 28% are family members or friends
  • 42% work in the field of health and social care
  • 5% are researchers
  • 4% are young onset dementia service providers

Our members work within organisations in the UK including:

  • Alzheimer’s Research UK
  • Alzheimer’s Society
  • Dementia Carers Count
  • Dementia Engagement and Empowerment Project (DEEP)
  • Dementia UK
  • Journal of Dementia Care
  • Rare Dementia Support
  • tide

Why do people join the Network?

Feedback from members tell us that the top reason why they joined the Network was in order to receive young onset dementia-specific information and resources and that joining has made them feel better informed and better connected.  They believe that the Young Dementia Network is having a positive impact on policy, practice and service provision.

Our steering group

Our steering group includes a mix of people affected by young onset dementia, clinicians, researchers and a range of service providers who together guide the development of the Network and its activities

Find out more

Get involved

The Young Dementia Network provides opportunities for its members to collaborate, share experience, knowledge and to learn from each other

Find out more

Join the Network

Joining the Young Dementia Network is FREE!


Join here