Employment and work

Here you will find a collection of young onset dementia research studies related to employment and work.  They have been selected by Dr Andrea Mayrhofer, Senior Research Fellow, Newcastle University. 

Some of the links we provide are to the abstract only.  For a full paper it may be necessary to subscribe to the site or to pay a fee.

Title – Dementia, work and employability: using the capability approach to understand the employability potential for people living with dementia

Summary – 2020 study exploring the potential for supporting and promoting the employability of people living with dementia.  Click here

Title – Dementia in the workplace: the implications for career development practice

Summary – 2019 study that argues that more attention needs to be given to supporting employees with dementia to either remain in work or exit the workplace, and that career development practice has a key role in this.  Click here

Title – Dementia in the workplace case study research: understanding
the experiences of individuals, colleagues and managers

Summary – 2017 study aims to explore the employment related experiences of people with dementia, and attitudes of employers and/or co-workers towards supporting people with dementia, in order to identify the potential for continued employment post diagnosis.  Click here

Title – Young onset dementia: Negotiating future workplace roles and identities

Summary – 2017 study on the significance of meaningful activity; how can such activities be constructed.  Click here

Title – Sustaining people with dementia or mild cognitive impairment: in employment: a systematic review of the evidence

Summary – 2016 systematic review of the literature concerning young people with dementia who are either in employment or wish to be employed.  Eight articles were reviewed which highlighted the need for reasonable adjustments and sheltered employment opportunities to support continued engagement with employment.  Click here

Title – What are the experiences of people with dementia in employment?

Summary – 2016 paper on the rise in retirement age means that number of people developing dementia whilst in employment will rise.  Click here

Title – An exploration of the impact of younger-onset dementia on employment

Summary – 2016 – Post formal employment: little expectation that a person might continue to work in a different capacity perhaps; implication: lack of opportunities.  Click here

Title – Creating a dementia friendly workplace: A practical guide for employers

Summary – 2015 – The Alzheimer’s Society addresses  issues such as ‘dementia friendly employers’; creating a dementia friendly working environment; practical tips; supporting the person living with dementia in the workplace (early phase / ongoing support / leaving work). ​ Click here

Title – Evaluation of a workplace engagement project for people with younger onset dementia

Summary – 2015 – Work as therapy.  Participants wore staff uniforms to create a sense of identity and to be identifiable as staff for customers.  Click here

Title – Dementia in the workplace: a review

Summary – 2015 –  ‘A common finding was that employers appear to lack knowledge to enable them to support people with dementia or cognitive impairment in the workplace.’  Click here

Title – ‘It’s nice to have something to do’: early onset dementia and maintaining purposeful activity

Summary – 2014 paper on traumatic secession of work; need for purposeful activity; need for increased education and awareness in the workplace.  Click here

Title – Side by Side: A workplace engagement programme for people with younger onset dementia

Summary – 2013 demonstration project: Seven people with mild dementia work one day per week beside a work-buddy in a large metropolitan hardware store.  Work-buddies are store employees who have undergone dementia training.  Click here

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