The Young Dementia Network, launched in 2016 and hosted by Dementia UK since November 2020, is a collaborative network, an influencing community seeking to improve lives through campaigning and empowering with knowledge and information.
We know first-hand about the impact of dementia on younger people and their families and how isolating it can be. We believe that everyone affected should be well informed, feel connected to others and enabled to live life to the full.
We are united in our purpose to improve the lives of people living with young onset dementia and their families now and createpositive change fora betterfuture.
The Network has a multi-year plan worked on during 2021 covering 2021-2024 which confirms our purpose and outlines our activities, aims and intended impact.
Our activities and impact
The Network’s welcoming community:
collaborates with individuals and organisations to bring about lasting change
campaigns for improvements in the policy and practice
provides opportunities for members to share experience and knowledge, and learn from each other
creates resources for younger people and their families, for people working in health and social care and for service developers and commissioners
The Network works to connect and signpost services but does not directly provide a support service. Dementia UK’s website has information and resources about young onset dementia, a Find support listing of groups and services across the UK and via their Helpline and virtual clinic can offer support and advice around young onset dementia.
We aim to influence policy and encourage better young onset services across the UK. Our priorities have been identified by people affected by young onset dementia
People affected by young onset dementia are poorly served across the UK. We are seeking national and high-level service, policy and practice changes that will make a tangible difference to people’s lives