Resources for people affected by young onset dementia

The Young Dementia Network has created a range of resources with and for people with a young onset dementia diagnosis, their family members and friends

Young onset ID cards

ID cards designed for a person living with young onset dementia and their family members and supporters to use when out and about

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Personal checklist

For anyone who has concerns about signs and symptoms of young onset dementia. A checklist which can be used to record symptoms a person may be experiencing and aid a discussion with a GP

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Diagnostic clinic leaflet

A leaflet, ideal for use in memory clinics and diagnostic services, to inform newly diagnosed people of the national organisations who may be able to offer support and information

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Diagnosis experience checklists

For use by people who may have young onset dementia and their family members they set out the experience a person should expect during the process of assessment and diagnosis

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Young onset dementia group guidance

Age-appropriate support is lacking in many parts of the country. We are keen to encourage opportunities for the under 65 age group to meet others in similar circumstances and have created this guidance to help you to plan and run a young onset dementia group

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Dementia support roles guidance

This guidance includes topics younger people with dementia identified as important for support roles who may not usually work with young onset dementia

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Good practice guide

Shares the key findings and recommendations from the three-year long Angela Project research study, outlining good practice in young onset dementia and how to improve diagnosis and support for younger people with dementia

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Request our resources

If you would like any of our leaflets or resources in hard copy format, complete our request form via the link below

Click here

Other Network resources 

  • Decision-making guide for GPs – click here
  • GP surgery leaflet – click here 
  • Young onset dementia pathway – click here