Peer support
Help us drive improvements in tailored support for people affected by young onset dementia
Lack of tailored support is one of the biggest challenges for younger people affected by dementia so connecting with others in a similar situation can make a real difference. Whether through groups, online communities, or informal meet‑ups, peer support can reduce isolation, offer practical ideas, and create a sense of belonging.
The Young Dementia Network wants to help drive long‑term improvements in tailored support for people affected by young onset dementia. That is why we ran a survey asking for your views to help us understand the experiences of peer support among younger people affected by dementia.
We were blown away when 168 people took part in our survey. 65% were family members or friends, and 29% were people living with young onset dementia.
We have created a short report sharing data from the survey and some of the responses. We will use this information and quotes to inform our future campaigns and messaging.
Thank you so much to everyone who took part and shared their experiences so openly.
When we meet other people who have dementia and can just talk and be stupid occasionally. We are with people who understand and who don’t question.
George Rook, living with young onset dementia