Young onset dementia: guidance for dementia support roles

This guidance is primarily for dementia advisors, support workers and key workers who may not usually support people living with dementia under the age of 65 years old.  

It is intended to guide discussion with the person with young onset dementia and their families and should be used flexibly to adapt to individual needs and circumstances.

It is intended to be used as a prompt to aid the support that workers offer but is not intended to tell people what is needed. People affected by young onset dementia should have the opportunity to feel empowered by the prompts on this guidance and it should be utilised in a versatile way with the individual.