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Peer support

Help us drive improvements in tailored support for people affected by young onset dementia

Lack of tailored support is one of the biggest challenges for younger people affected by dementia so connecting with others in a similar situation can make a real difference. Whether through groups, online communities, or informal meet‑ups, peer support can reduce isolation, offer practical ideas, and create a sense of belonging.   

The Young Dementia Network wants to help drive long‑term improvements in tailored support for people affected by young onset dementia. To do this, we need to hear from you.   

Peer support is where individuals with shared lived experiences provide mutual help, guidance, and encouragement to each other. By sharing your experiences of peer support, you’ll help us understand what’s working, where the gaps are, and how we can campaign for change. Your insights will also shape our messaging, advocacy work, and future resources.  

This survey is designed to be anonymous and should take around 10 minutes to complete, depending on how much you would like to say. 

At the end of the survey you may choose to provide your email address. This information will only be used to contact you about further information about peer support and will not be used as part of the survey analysis.

When we meet other people who have dementia and can just talk and be stupid occasionally. We are with people who understand and who don’t question.

George Rook, living with young onset dementia