Our achievements

Though the profile of young onset dementia has increased, much must change for those affected. Our growing membership is determined to accelerate progress which is reflected in our 2025-2028 strategy. Gains are incremental, achieved collaboratively and mark steps towards a better future. Here is a selection of our work:

  • Stronger voices for people affected by young onset dementia
    Young onset dementia perspectives were included in the government’s 10 Year Health plan consultation 2024-2025, the All-Party Parliamentary Group on Dementia reports – Raising the Barriers: Tackling regional variations in dementia diagnosis 2023; Workforce Matters: Putting people affected by dementia at the heart of care 2022 and Hidden No More: Dementia and disability 2019; and in the Health Service’s RightCare Dementia Scenario 2024   
  • Every person with young onset dementia counts  
    Successfully encouraged the development and use of more accurate prevalence data to inform service improvements and have been instrumental in pressing for vital sub-type reporting 
  • Building vital evidence  
    The Angela Project, the UK’s largest research project on young onset dementia diagnosis and post-diagnostic support grew directly from the Young Dementia Network. Funded by the Alzheimer’s Society, the clinical-academics who proposed the project, secured the funding and ran the studies are all founder members of the Young Dementia Network. It ran from 2016-2019 and continues to inform young onset dementia work through its publications and resources
  • Sharing knowledge and experience   
    Ongoing international collaboration with professionals in the Young Onset Dementia Knowledge Centre, Netherlands and with an Australian consortium including the Young Onset Dementia Special Interest Group and Young People in Nursing Homes National Alliance, Australia helps us learn from each other  
  • Every person with young onset dementia deserves a good service   
    Influenced the inclusion of young onset dementia standards within the Memory Service Accreditation Programme and contributed to the latest Royal College of Psychiatry’s young onset dementia in mental health services report   

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