Why numbers matter and change is possible

Our webinar on Wednesday 19th October 2022 was presented by Dr Janet Carter and Michael Jackson. They discussed the importance of using data to better communicate the need for improved services for younger people living with dementia. Currently no routinely published data of the number of people with a diagnosis of young onset dementia exists. Inadequate data = inadequate services.

Based on recent findings estimating that 7.5% of those diagnosed with dementia are diagnosed under the age of 65, Wendy Mitchell who is living with young onset dementia, offered her personal view on why these numbers matter, how commissioners could use the data and what needs to happen next if we are to make the most of the data to create change.

We were also joined by Sheila Fletcher, Commissioning Manager, Mental Health and Vulnerable Adults at Humber and North Yorkshire Health and Care Partnership and Helena Hounslow, Mental Health Programme Manager at NHS Lancashire and South Cumbria Integrated Care Board.

Dr Janet Carter is Associate Professor in Old Age Psychiatry in the Division of Psychiatry, Faculty of Brain Sciences, University College London and Young Dementia Network steering group member.

Michael Jackson is Programme Lead for Neurology and Dementia Intelligence, Office for Health Improvement and Disparities, Department of Health and Social Care.

Wendy Mitchell was diagnosed with young onset Alzheimer’s disease at the age of 58. Since her diagnosis she has become a best-selling author and blogger. She is a member of the 3 Nations Dementia Working Group and Young Dementia Network steering group member.