Dementia, Disability and Hope is a vision created with, and for, people with dementia. There are things we can all do to make their lives more hopeful.
The Dementia, Disability and Hope vision draws on the ‘social model of disability’. This shows us that we need to look much more widely than the condition of dementia itself and its symptoms. Social attitudes and ignorance, employment practices and environmental issues can all be very disabling. We are committed to focusing on finding solutions to these barriers, raising awareness of the rights of people with young onset dementia, and so enabling them to live more positively.
The vision is one of hope. It is hopeful because we each have the power to change or minimise these factors, by adjusting both the physical environment and our attitudes and behaviours. The requirement to make such adjustments is already enshrined in equality law – but it is often overlooked.
There are many benefits to this rights-based approach.It can empower and give hope to those who are diagnosed and their families. It helps us to focus on how the disabilities associated with young onset dementia connect with factors in society, attitudes, and the environment. It helps to highlight the strengths, resilience and abilities of people with young onset dementia themselves, and the principles of solidarity and inclusion. And by enabling self-advocacy and advocacy, it should help people with dementia to access everything that others, with or without disabilities, access.
Our vision was co-created, launched and adopted in 2022 by a number of dementia organisations in the UK who came together to form a group called One Dementia Voice. It includes:
Alzheimer’s Research UK
Innovations in Dementia
Lewy Body Society
Rare Dementia Support
together in dementia everyday (tide)
Young Dementia Network
We invite you to find out more, to share the Dementia, Disability and Hope vision and to actively use it in your lives and/or your work. We hope that these web pages, our accompanying leafletand supporting resources will help you to do so.
Information for people with dementia
Information about Dementia, Disability and Hope for people who have a diagnosis of dementia