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Current research studies
Taking part in young onset dementia research can provide an opportunity for people whose lives are affected by young onset dementia to contribute to the future of dementia care and treatment and to make a positive difference.
Listed below are some dementia research opportunities that may be of interest
Creating resources to support people with dementia to use social media
Researchers at Bournemouth University are designing training and resources to help people with dementia (and the family carers who support them) to use social media safely and effectively. They are looking for people with a dementia diagnosis, or carers of people with a dementia diagnosis, to take part in an online survey and interviews to help design the content, format and delivery of these training resources. If you are interested in taking part please click here, or email ctalbot@bournemouth.ac.uk for more information.
(March 2024)
Do you want to trial an app to help build habits and maintain your independence?
Instinctively, a small team at consultancy Else London, is partnering with Alzheimer’s Society to help test an app which aims to remove barriers to independence for people living with dementia and lighten the load for their supporters. They are looking for participants for a six-week trial starting in March 2024. Please email dementia@elselondon.com using the subject ‘Interested’ for more information or complete this survey.
(February 2024)
Social care for people living with young onset dementia: the DYNAMIC study
Are you interested in helping to improve social care for people with young onset dementia? The DYNAMIC study is seeking to better understand current social care planning and provision for people with the condition. Researchers from the University of Bradford are looking for people who have a role in or an awareness of adult social care planning, provision, management or commissioning in England to complete an online survey that takes no more than 10 minutes. You can access the survey here. The information from the survey will be used to create recommendations and resources for improving social care provision for people living with young onset dementia.
(January 2024)
Research study about the psychological impact on children experiencing parental young onset dementia
Researchers at the University of Liverpool are looking for people with a young onset dementia diagnosis, or their partners and children for a research study about the psychological impact on children experiencing parental young onset dementia. Click here to see a flyer with more information or to take part or find out more email icarlin@liverpool.ac.uk.
(January 2024)
Dementia at Younger Ages Mapping Ideal Care (DYNAMIC)
The DYNAMIC research study focuses on social care provision for people with young onset dementia and how it may be improved. Researchers at the University of Bradford are currently looking for people in England who are living with young onset dementia, their family members or friends to interview for the study. Register your interest via this form or click here for more information.
(November 2023)
Do you have a parent diagnosed with an inheritable type of dementia?
Researchers from Hunter College, New York, the University of Sheffield and Manchester Metropolitan University are interested in understanding the impact on children who are now 18 years of age or older of having a parent with an inheritable type of dementia (such as familial Alzheimer’s disease or frontotemporal dementia) and their thoughts about genetic testing in order to better support such individuals and their families.
If you are 18 or older and have a parent with an inheritable form of dementia, they would be interested in talking to you about your experience, and about your thoughts around genetic testing. They are hoping that what you have to tell them will help support other people in your situation. This research is being led by: Caroline Gelman, PhD, Associate Professor of Social Work at Hunter College, New York and Pat Sikes, PhD, Emeritus Professor, School of Education, University of Sheffield, England. If you are interested in participating in an interview or have further questions, please contact Pat: p.j.sikes@sheffield.ac.uk
DYNAMIC (Dementia at YouNger Ages – Mapping Ideal Care): Improving social care for people with young onset dementia and their families
The Young Dementia Network is proud to support the University of Bradford’s DYNAMIC study which aims to identify, prioritise and produce recommendations and resources to address improvements in social care for people with young onset dementia and their families. For more information contact Professor Jan Oyebode, email j.oyebode@bradford.ac.uk
For more dementia research opportunities, please visit Join Dementia Research.
Research and evidence
A collection of research focusing on the most prominent subjects relating to young onset dementia, gathered by members of the Young Dementia Network Steering Group and other experienced researchers
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